|
Characteristics
|
Range
|
|---|
|
General health perception
|
| |
T1 - best
|
≥6
|
|
T2 - intermediate
|
5
|
|
T3 - worst
|
≤4
|
|
Mean ± SD
|
4.6 ± 1.3
|
|
TSQM scores
|
|
Total
|
T1 - best
|
≥81
|
|
T2 - intermediate
|
68–80
|
|
T3 - worst
|
≤67
|
|
Mean ± SD
|
74 ± 16
|
|
Effectiveness
|
T1 - best
|
≥76
|
|
T2 - intermediate
|
61–75
|
|
T3 - worst
|
≤60
|
|
Mean ± SD
|
71 ± 21
|
|
Side effects
|
T1 - best
|
100
|
|
T2 - intermediate
|
70–99
|
|
T3 - worst
|
≤69
|
|
Mean ± SD
|
81 ± 26
|
|
Convenience
|
T1 - best
|
≥81
|
|
T2 - intermediate
|
66–80
|
|
T3 - worst
|
≤65
|
|
Mean ± SD
|
70 ± 17
|
|
Global
|
T1 - best
|
≥86
|
|
T2 - intermediate
|
71–85
|
|
T3 - worst
|
≤70
|
|
Mean ± SD
|
78 ± 19
|
|
PROMIS fatigue T-scores
|
| |
T1 - best
|
≤53
|
|
T2 - intermediate
|
54–60
|
|
T3 - worst
|
≥61
|
|
Mean ± SD
|
57 ± 9
|
- Respondents were ranked by their scores and divided into tertiles (T1, T2 and T3) corresponding to best, intermediate, and worst, respectively. GHP was measured on a 1–7 scale (1 = poor health and 7 = excellent health). TSQM transformed scores were measured on a 0–100 scale (0 = worst satisfaction and 100 = perfect satisfaction). Fatigue was assessed using the PROMIS Fatigue Short Form 7a and Parent/Caregiver Proxy respectively ( 29.4 = least fatigue and 83.2 = most fatigue)
- GHP General health perception, PROMIS Patient-Reported Outcome Management Information System, SD standard deviation, SCIG subcutaneous immunoglobulin, TSQM Treatment Satisfaction Questionnaire for Medication
