Characteristics | Range |
---|
General health perception |
| T1 - best | ≥6 |
T2 - intermediate | 5 |
T3 - worst | ≤4 |
Mean ± SD | 4.6 ± 1.3 |
TSQM scores |
Total | T1 - best | ≥81 |
T2 - intermediate | 68–80 |
T3 - worst | ≤67 |
Mean ± SD | 74 ± 16 |
Effectiveness | T1 - best | ≥76 |
T2 - intermediate | 61–75 |
T3 - worst | ≤60 |
Mean ± SD | 71 ± 21 |
Side effects | T1 - best | 100 |
T2 - intermediate | 70–99 |
T3 - worst | ≤69 |
Mean ± SD | 81 ± 26 |
Convenience | T1 - best | ≥81 |
T2 - intermediate | 66–80 |
T3 - worst | ≤65 |
Mean ± SD | 70 ± 17 |
Global | T1 - best | ≥86 |
T2 - intermediate | 71–85 |
T3 - worst | ≤70 |
Mean ± SD | 78 ± 19 |
PROMIS fatigue T-scores |
| T1 - best | ≤53 |
T2 - intermediate | 54–60 |
T3 - worst | ≥61 |
Mean ± SD | 57 ± 9 |
- Respondents were ranked by their scores and divided into tertiles (T1, T2 and T3) corresponding to best, intermediate, and worst, respectively. GHP was measured on a 1–7 scale (1 = poor health and 7 = excellent health). TSQM transformed scores were measured on a 0–100 scale (0 = worst satisfaction and 100 = perfect satisfaction). Fatigue was assessed using the PROMIS Fatigue Short Form 7a and Parent/Caregiver Proxy respectively ( 29.4 = least fatigue and 83.2 = most fatigue)
- GHP General health perception, PROMIS Patient-Reported Outcome Management Information System, SD standard deviation, SCIG subcutaneous immunoglobulin, TSQM Treatment Satisfaction Questionnaire for Medication