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Table 1 Respondent demographics

From: Subcutaneous immunoglobulin in primary immunodeficiency – impact of training and infusion characteristics on patient-reported outcomes

Characteristics

Respondent, N (%)

Non-infusion characteristics

 Age

0–17 years

40 (11%)

≥18 years

326 (89%)

 Experience with IgG prior to SCIG

Ig-naïve

138 (38%)

Ig-experienced

226 (62%)

 Experience with SCIG

< 2 years

129 (35%)

≥2 years

235 (65%)

 SCIG transition decision driver

Prescriber

102 (47%)

Patient

96 (45%)

Other

17 (8%)

 SCIG treatment decision driver

Prescriber

238 (65%)

Patient

95 (26%)

Other

33 (9%)

 Time on treatment

< 2 years

76 (21%)

≥2 years

290 (79%)

SCIG training characteristics

 Training location

Hospital

11 (3%)

Doctor’s office

55 (15%)

Home

274 (75%)

Other

23 (6%)

 Who conducted training

Clinical staff

43 (12%)

Specialty pharmacy

278 (78%)

Nurse

30 (8%)

Other

6 (2%)

 Number of training sessions required

1–3

291 (80%)

≥4

71 (20%)

 Length of training sessions

≤2 h

225 (63%)

> 2 h

131 (37%)

 Competence of trainera

1–5

72 (20%)

6–7

290 (80%)

 Knowledge of trainera

1–5

99 (28%)

6–7

261 (72%)

 Ease of trainingb

1–5

103 (28%)

6–7

263 (72%)

 Confidence after traininga

1–5

110 (30%)

6–7

251 (70%)

 Satisfaction with quality of traininga

1–5

76 (21%)

6–7

286 (79%)

 Barriers to training

No

245 (82%)

Yes

53 (18%)

SCIG infusion parameters

 Preparation duration

≤20 mins

196 (54%)

> 20 mins

168 (46%)

Median [IQR] mins

20 [15, 44]

 Actual infusion time

< 2 h

161 (44%)

≥2 h

203 (56%)

Median [IQR] mins

120 [80, 150]

 Complete infusion time (inc. prep and clean-up)

≤3 h

237 (65%)

> 3 h

127 (35%)

Median [IQR] mins

155 [115, 209]

 Frequency of infusionsc

> 1 per week

28 (8%)

Weekly or up to every 2 weeks

284 (79%)

Every 3 or 4 weeks

48 (13%)

 Number of sites per infusion

1–3

212 (58%)

≥4

152 (42%)

 Product concentration

10%

118 (33%)

20%

243 (67%)

  1. IQR interquartile range, IgG immunoglobulin G, SCIG subcutaneous immunoglobulin
  2. aOn an anchored numeric scale from 1 to 7 (1 = not very competent/knowledgeable/confident/satisfied and 7 = very competent/knowledgeable/confident/satisfied) bOn an anchored numeric scale from 1 to 7 (1 = very difficult and 7 = very easy)
  3. cPatients responding ‘other’ omitted from summary as frequency unknown